Talent Show

Our church had a talent show--Maddie (age 9) chose to sing "Mighty To Save". The camera shaking is me trying not to ball my eyes out. I was and am SO proud of her!!! She is so much more brave than I am.

4th of July

Maddie was asked by our music minister to sing this on Sunday July 4, 2010. We should always remember to thank those who serve our country.

What Have We Been Up To?

Wow--it's been a while. Spring, going into summer, is always super busy for our family. I feel like there are so many things to say, and to catch up on. Instead, I'll post some pics of some things Maddie has done, just to prove that nothing's going to stop her. Not even stupid old diabetes.....

Maddie the jumproper

Maddie the wiffle ball player





Maddie the gymnast




Maddie the fashionista




Maddie the diva

Maddie the roller coaster rider
(Carrowinds--and man, was that a nerve racking trip! High, then low, then high, then low....)

Maddie the caterpillar rider
(and no, thank goodness, she didn't throw up!)




Maddie the swinger
(well, you know what I mean.....)
that's her in the white shirt, mouth wide open, screaming

Oh, please......




Maddie the water bug

Maddie the 4th of July soloist
(video to come later.....)

Maddie, queen of the skate rink
(plus her BFF, Grace)




Maddie the maker of cupcakes
(well, we tried.....)




Maddie the soccer girl
(she's a tough cookie on the field!)

And those are some of the highlights of the past few months. Thanks for checking them out! We love our blog friends!!

Celiac

NEGATIVE RESULTS FOR CELIAC DISEASE! Yay!!!

Whew~


- Posted using BlogPress from my iPhone

Should I, or Shouldn't I?

Every time I see a child who has to use the bathroom constantly, I always think, "I bet she has diabetes, and they need to get her checked....." But I'm not bold enough to go up to the parent and scare the living daylights out of them.

Although, I would have appreciated it if someone would have said, "Your daughter is almost 6 years old and wearing a size 2T. And she's wetting the bed, when she's never done that, even when she was potty training. And she drinks constantly, and goes to the bathroom constantly. And her eyes are sort of sunken in. You should probably get her checked for diabetes."

There's a little girl on Reilly's soccer team that is 4 years old, and has to go to the bathroom probably every 10 minutes. I know this because my husband coaches the team, and she'll run off the field, mid game, and have to run to the port-a-john, leaving him wondering why they are 1 kid short on the field.

Last Saturday, as I watched her go back and forth and back and forth with her mom, I almost suggested that they get her checked for diabetes. Or better yet, say, "I've got a glucometer in my purse--let me check her blood sugar, and give you a heart attack at the same time!"

But, I didn't. And for the rest of the day, I couldn't help but wonder if she really does have it, and should I have suggested it to her parents.

I mean, come on--if anyone knows the signs of high blood sugar, it's the mother of a diabetic, right? I'm not sure what to do next Saturday. I wouldn't want this family to find out in an emergency room, or get a phone call that the little girl has passed out at school. But I also don't want to blurt out, "I'LL BET SHE HAS DIABETES--AN AWFUL DISEASE THAT SHE'LL HAVE FOR THE REST OF HER LIFE--AND ALSO ONE THAT WILL MAKE YOUR LIFE VERY DIFFICULT! YOU SHOULD HAVE HER CHECKED FOR IT!"

I'm always quick to tell my friends and acquaintances what Maddie's symptoms were, just in case their child may show symptoms, and maybe they should get them checked. The sooner the better is what I believe. It's better than getting a shocking phone call, right?

Hhmmm.....what to do....what to do.....

Oh No--I'm Bleeding!!

I look tired all the time. This would be because I stay up until around 2 am, in order to check Maddie as late as I possible can, (hence the LATE night blog entries).

I do this for 2 reasons-- 1) I don't trust that the blood sugar reading before bed was on it's way up, or on it's way down, therefore causing her to crash in the middle of the night, and 2) I don't trust Maddie's pump. I spent 2 years controlling the insulin through shots, and now that I don't have to do that, I can't believe that a little $7,000 pump can figure out what my brain has been trained to do.

Anyway, every night, I go into her room and do the same routine. Every night. EVERY SINGLE NIGHT. I always scoot her skinny legs out of the way, set her meter on her little tummy, watching it rise and fall as she breathes, then I put the strip in the meter, get the lancet ready, get her ring finger (because that the one SHE uses the least throughout the day,) and then stick her and put her blood on the strip.

As I wait for the reading, which takes about 4 or 5 seconds, I'll wipe off her blood so that she doesn't accidentally get it on her bedding while she sleeps. Then I either correct her, or give her tablets, or hopefully do nothing, and leave her room.

At this point, I always go straight into my bathroom and wash my face and brush my teeth. But the funny thing is, that almost every night, I have blood on either my first finger, or my thumb, depending on which way I was balancing the meter while I was wiping off her finger. And almost every night seeing the dried blood on my hand startles me.

I don't know why I do this--I do it almost every night. I'm not afraid of blood, or anything like that, it's just that as an adult, if I'm ever bleeding, I usually know about it. But EVERY SINGLE NIGHT, it's there, and it always startles me. My first reaction is always, "Oh no! I've got blood on my hand! What have I done to myself?" Then almost immediately I realize that it's Maddie's blood, and I wash my hands.

It's become a habit that as I wash my hands, almost every night, at 2:00 in the morning, I think to myself that it's sad that I've got my daughter's blood on my hands almost every night. That should not be allowed. I shouldn't have to poke and prod my child to draw blood as she sleeps. No one should have to do that. It's just not fair. Just another reason that I hate diabetes.....

The Dreaded Appointment

Every other month we see our endo, and on the way there, I dread finding out what Maddie's A1C is. This time was no different. Alas, the A1C machine (don't know what it's called) beeped, so I asked. She had gone from 8.5 to 8.7. Although I was glad she wasn't in the 9's, going UP was not the direction that I was hoping to have gone.

I allow Maddie to be a little higher at night, or I don't give her the complete correction, because I have this eminent fear that she will crash during the night, and not wake up. Because whatever the number is, I don't know if it's going up, or down at a rapid pace.  (We do not have the CGM at this point in time.) This is my problem--she's too high during the night and first thing in the morning. And it's all my fault. I've come to grips with this. I take full responsibility.

I HATE DEALING WITH THIS STUPID DISEASE.

In addition to screwing up her A1C, her height and weight has gone from the 50th percentile, to the 25th percentile over the last year. Yeah, I know--I'm such a great mom.....not. My child is shrinking. Well, actually, she's not shrinking, she's just not growing.

I HATE DIABETES!!!

"But she's picky!" and "She isn't hungry much of the time!" and "She eats healthy food MOST of the time, so she's probably not getting enough calories!" These were my ignorant and useless justifications for my reprimanding from the doctor. Basically, she's not eating ENOUGH, therefor, not getting enough insulin. Could this be any more difficult to grasp in my little blonde brain?

Everytime I read other type 1 moms' blogs, I learn something new--like how the humidity can alter blood sugars, or how allergies to pollen can send you through the roof. Will I ever get the hang of this? I mean, come on, people--you would think that after almost 5 years, I would have gotten the hang of this by now.

Nope. Did I mention that I hate this stupid disease?