Showing posts with label blog. Show all posts
Showing posts with label blog. Show all posts

Sunday, October 25, 2009

Reply

I just wanted to write a quick post to reply to a comment that someone made on one of my older posts.  I don't know the commentor, but I am very glad that she found my blog and read it.  That really means a lot to me.  The more we know about the stuggles people have with diabetes, the closer we'll be to finding a cure.

I think she misunderstood the title of my blog, which is "A Beautiful Diabetic".  She wrote:   

"It is sad that you identify your daughter as diabetic.
It should be....My Beautiful daughter is Maddie. She is 9 and she's smart, talented, full of life, and hilarious, all rolled up into one precious little body. o yeah she is diabetic.
Diabetic is not who she is."

You're right--a diabetic is not who she is.  And just so you know, I don't really 'identify' her as diabetic.  The reason I called my blog "A Beautiful Diabetic" is because I want people to know about this disease, and how it affects children and families on a realistic daily basis.

I could have called it ":My Beautiful Maddie" and that would have been a wonderful title, but for me, I want to reach out to that one mother, who sits in despair at her computer, googling diabetes because her child was just diagnosed.  I want her to know that my diabetic child lives a normal, fun-filled, yet sometimes treacherous life.  This disease is a fight that we are going to win, and that is the point of my blog.

Another reason for writing my blog, mostly about diabetes, is because there is a huge community out there of families with children who have the disease.  Personally, I value those other moms who have that in common with me, and who also have blogs about their diabetic kids.  I look to them for support, and questions when necessary.

But, thank you, friend, for caring enough to leave a comment on my blog.  I sincerely appreciate your input.  But don't be sad~  I don't identify Maddie as a diabetic.  It's just a creative title that is intended to catch the eye of someone who is struggling with the same thing. 

Saturday, September 12, 2009

Being a Mom

My initial intention was to write a blog for moms whose kids had been recently diagnosed with diabetes.  My thought was to let them know that even thought it's devastating to find out that your child has a chronic disease, it's probably the best one to have.  You see, it's not cancer (thank goodness) or a tumor or a disability that will make her look very different.  Diabetes is something that can be easily hidden, easily regulated, and pretty easily monitored.

I also wanted those "newly diagnosed" moms to read about a normal family with normal kids, who live a normal life, but that live it with diabetes.  See, I don't claim to know much about politics, or the financial world, or business, or even sports.  I don't watch the evening news, or really care about watching it.  I don't have a medical degree, or ever thought about getting one.  My talents lie only in being creative.  I don't claim to know much about the cardiovascular system, or the nervous system, or the endocrine system, or any other systems.

But, I can tell you that I know almost all there is to know about taking care of a child that has diabetes.  I know what to do if her blood sugar gets too low.  I know what to do if it gets too high.  I know how to give shots.  I know how to change an infusion set.  I know what to feed, and what not to feed a diabetic.  I know how big "one serving" of pasta is.  I know how many carbs are in a half cup of white rice.  I know what's going to happen if she's too active.  I know what to do if she's been sitting still for a long time.  I know what to do if she gets upset.  I know what to do when her adrenaline kicks in.  I know what to do when she's sick.  I know what to do if she has ketones in her urine.  You give me a diabetes scenario, and I can tell you what to do with it.  

My sister always says that I know way more than she does about diabetes, even though she's had it for over 13 years.  I think I know why.  It's not me that has the disease.  It's my child.  I didn't set out to learn about diabetes.  I did it because I had to.  It's my responsibility to take care of Maddie, so I have to know all of that stuff.  If I were the one with this disease, I probably wouldn't know as much about it. 

As moms, we don't let our kids out of our sight, unless we know that they're going to be safe.  That's our job.  It's why we're moms.  I went to college at a huge university for 4 years and got a Bachelor of Arts degree.  No employer or cushy job in the world is as sweet as being a mom.  I'm going to give it my all.  And that includes taking care of a child with diabetes.